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Frugalistic Lupus Sister
Добавлен 31 июл 2013
Hello everyone!!!
Thank you for visiting my channel! My channel is designated to share with you my lupus journey. My videos are aimed to show you what I use to help me cope daily. Also, I may share some cool videos of my family as well shop, go on vacation or just having fun.
I hope you enjoy!
Thank you for visiting my channel! My channel is designated to share with you my lupus journey. My videos are aimed to show you what I use to help me cope daily. Also, I may share some cool videos of my family as well shop, go on vacation or just having fun.
I hope you enjoy!
Happy Saturday #lupus #lupuswarrior #camping #blackgirlcamp #tentcamping
Happy Saturday #lupus #lupuswarrior #camping #blackgirlcamp #tentcamping
Просмотров: 193
Видео
Not feeling my best…this too shall pass #lupus
Просмотров 97Год назад
Not feeling my best…this too shall pass #lupus
Got the “Booster” #lupus #afib #autoimmunedisease #booster
Просмотров 2892 года назад
Got the “Booster” #lupus #afib #autoimmunedisease #booster
I haven’t been feeling my best lately #lupus #afib #cardiacablation #druginducedlupus
Просмотров 3393 года назад
I haven’t been feeling my best lately #lupus #afib #cardiacablation #druginducedlupus
Quick Check in!! Post vaccine report
Просмотров 1103 года назад
I work in the medical PRN and aftercare fields which allowed me to get the vaccine.
Follow up cardiologist appointment and my daily activities
Просмотров 2144 года назад
Follow up cardiologist appointment and my daily activities
Friday Vibes with Luna after a 48 hours heart monitor
Просмотров 1024 года назад
Friday Vibes with Luna after a 48 hours heart monitor
How many Rheumatologist and/or specialists do you see for care?
Просмотров 1404 года назад
How many Rheumatologist and/or specialists do you see for care?
Positive or Normal ANA: Clarify somethings
Просмотров 3084 года назад
Positive or Normal ANA: Clarify somethings
I’ll be back soon! Trying to eat better
Просмотров 784 года назад
I’ll be back soon! Trying to eat better
I haven’t been formally diagnosed yet but I will undergo lab tests soon. My symptoms started during ECQ pandemic and right after my father in law’s death who took his life when he was declared PUI. Witnessed his last moments. It was awful plus the fear of covid at the time. Always feeling feverish, headaches that wont go away. I thought it was just perimenopausal. Then from one symptoms to another so I searched the net and joined pages for GERD bec I have that symptom as well. One gerd sufferer said she has lupus and gerd is one of her symptoms plus sudden weightloss. That led me to reseach on lupus. So here I am after many other symptoms appeared. No butterfly rash though, but I have the gerd, headaches, achy body, bruises appearing. I used to bask on early morning sun but suddenly when I get exposed for a few minutes my skin starts to patch. Thank you for sharing these tips. I watched some vids and know a friend who knew a friend that’s been on remission for years when she started doing low carb and clean eating. I also watched some vids that maintaining a healthy gut helps keep lupus at bay. Praying always for God’s healing and to still be thankful as He takes care of me regardless of my physical state. Afterall, the immaterial is what’s more important because it remains forever for those who love God. Keep the faith everyone!!!
In my prayers, sweet lady. Hang in there you got this but Jesus REALLY has this❤💜
YOU LOOK GOOD TODAY!!! IAM IN BEAUMONT, TEXAS BE BLESSED 😊. FIRST TIME VIEWER
My ejection fraction is 80% is this normal
Hello hru?
I relate to this completely. Thank you for posting your experience.
I just was checking in on u I hope all is well with u and the family. Hope to see another video soon.
Stay safe out there
You are so beautiful
You have a hyperkinetic or hyperactive gallbladder. That is NOt normal hun. How are you doing now
Did you say cup of noodles?Maybe it was the sodium or MSG. Do you follow Dr. Eric Berg? Or Dr. Mark Hyman? They focus on nutrition, food as medicine to treat autoimmune diseases.
Hi sister ❤
I bind lupus off us in the name of Jesus ❤
I need to randomly say..I LOVE the "elevator chill music" in the background lol. Cheering me up girl. Thank u
Appreciate you sharing your story. Hope you are doing well. ❤️
Hey Lupus sister! I just had surgery on my eye for vitreous lining on the macular just on the retina. My vision went blurry so quickly so get it checked out. I get painful eyes ( uveitis) as a result of Lupus. Hope you feel better soon!❤
You're beautiful! I'm at the LabCorp getting my blood drawn up to see if I have Lupus. I was recently diagnosed with Celiacs disease. Blessings to you!
Good to see u 💜
Hello there!!!💜🌻
Do you think because you focus so much on your illness symptoms for channel you tend to feel sicker more? I heard lupus gets better with exercise, its like arthritis.
I think so. That’s why I try to focus on feeling better. My rheumatologist told me to exercise more to help with pain.
Wondered where you went! Glad you're back!!
This past year had been super busy for me and I some down time now to chat with y’all. Thanks a bunch 😊
Hey my Lupus sister I have been thinking of you. Just wondering how are you doing 💜💜🙏🏾🙏🏾🙏🏾🙌🏾
Very good Ok be encouraged Love Cassiecassie n Oye
Hello Lady!! So good to hear from you!! Missed your videos! Take care of yourself...🙏🏽🙏🏽🙌🏽
Sending prayers for a speedy recovery 🙏🏾🙏🏾
I'm so sorry that you're under the weather and sure hope you get back to yourself soon. Hang in there.
Praying for a speedy recovery 🙏🏾🤗❤️
I was diagnosed with Systemic Lupus Erythematous three years ago. My heart and prayers are with you stay strong my lupus sister.🦋💜🙏✝️❤🌝
Thank you so much!
Hey💜 Glad to see you.
I was diagnois recently and only God can tell me it's not the vaccine cause it, I took Pfizer.
Hi baby girl good to see and hear you Ok Love Cassiecassie
Hello! Hello!!
So glad to hear from you. I always love your videos and positive energy. Happy 50th!
Thank you so much!!
Hey My Lupus Sister I am so glad to hear from you glad to know you are ok. I have been looking on RUclips for you. Thank god to see you my sister stay safe. Many prayers 🙏🏾🙏🏾💜💜💜💜
Thank you!!
My blood test always normal but im still feel pain on my body, why like that? 😅😅
Many of these meds give you low platelet count. From experience go to Emergency Room.
I’m currently being tested for lupus and other connective tissue diseases…. Before your lupus diagnosis, were you diagnosed with a lot of infections ? Also low vit d and hypocalcemia? Things like that ? I have lab work showing antibodies but not antinuclear but fit all other criteria with imaging from ct scans of heart , lung issues , skin rashes, joints, spine .. the malaise and fatigue from it all is overwhelming too
I absolutely love listening to you. My wife was just recently diagnosed with lupus.... So I find RUclipsrs who share the same story and I enjoy listening to different people share where they are in this journey. Thank you and stay encouraged.
Hello 🤗 can you give us an update please?
What's happening?
My Ana was also positive but my rheumatologist told me it not high. I know I have fibromyalgia. Mmmim so confused.
I do basically everything you do....it's so hard for people to understand how it feels under the skin. My friends literally give me crap sometimes cause I simple don't feel well, or feel I have the energy to do things ...they think I don't want to spend time with them and that's not it. I'm in a severe flare up right now cause my stress is so high - I will ghost myself for days. I know those who understand don't give me grief, but some don't then on top of that I'm dealing with some real devilish people and that almost keeps flared. So I literally cut off everything and everyone just to feel better cause some people just don't know what a person feels like dealing with it. It's not just a headache, or a joint ache....it's all of it at the same time for long periods of time- I believe it's why I'm so scared to go back to work....Something that may be small to someone else may be this UNBEARABLE TRIGGER for me cause I've lived a life of pain, suffering and stress
My little sister was diagnosed with lupus couple months back and her first symptoms were joint pains 😞
Thanks for sharing this video you give me a hope
How can i deal with it, ifeel as i w’ll die
Good Day! My Hida scan came back normal so I took it upon myself to do a liver and gallbladder flush. What did I find? A least a couple hundred stones came out. (I don’t have lupus)
Your video is from 5 yrs ago but I’m glad I watched it. I’m new w lupus and learning more about it. I didn’t realize that frequently urinating could have been a symptom. I thought it was just me. Kidney pain! Omg! Feel that at night but again didn’t put it together as part of flare up. Thank you!!!
Hi @Frugalistic Lupus Sister! I hope all is well and you’re feeling better.
thank you for sharing I have Lupus I'm very sensitive to the sun and house light that why I like everything dark lol 🥰
I had a negative Ana two years ago. Yesterday I got a positive Ana and positive rnp
This is how I’m feeling today. Verry helpful.
I’m in early stages of diagnosis still. I always have the Rash it just goes from severe to less severe.. Join pain, brain fog (no kids), family history (extended) low c3 c4 but just out of range, low hdl. Sun sensitivity. Curious to meet with my doctor
Forgetfulness, hair loss, loss of appetite, dizziness, shortness of breath, nausea/vomiting, reflux, very very tired, tremors, all over intense pain, mood changes, odd periods ( it’ll end then like a week to a few days later will come back for like a month) anemia, dehydration, eye pain, change in vision.